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I will personally help and I will ask around to the doctors at repo about possible foundations I'm so sorry they are going through this and read the description of the wedding she is freezing which was exactly what my brother had. In hindsight I know that I would've made different decisions about the treatment I would not have done radiation and chemo therapy. And fortunately there's less than 5% survivability rate past two years it was the mediation with there be that impacted my brothers speech and his Motor skills which caused a severe limp on his right side and a weathering of it read like his speech was the toughest part and he was very frustrated but never complained to the one with me about difficult it was not to be able to express yourself. If he is not going through radiation if you were therapy I believe but he was actually survived longer. The poison is it exactly that and have some impact the tumor has a giant impact on the quality of life. I would have pursued completely non-traditional medicine I would have hired I would have done a lot of things we didn't do. The reason that we didn't do them because I was very much in pressed with her doctor and her surgeon and oncologist. Surgeons see things from perspective The knife in there hand. And oncologist see the problem through the lens of radiation. And Chemotherapy. They obviously use the tools they were trained on and given they rarely think outside of the box. Which to me seems almost cruel in the case of glioblastoma. They survivability rate past two years is 5% and past five is under 2% and past 10 is under 1% I think. And quality-of-life is almost always difficult to say the least. No radiation do not work for 99 or nine then why would you possibly put someone through the pain and suffering that radiation and chemo therapy cause. Why not take the chance that the guy who is five years out who had surgery and then took quadruple they recommended dose of cbd pills for 6 months changed his diet and whatever else he may have accidentally done. I know this is of little splice to her parents but I would have in hindsight pursued The 100% success rate of CBD in one instance than the traditional route you're taking where there is a 99% fail rate.
LYVM,
H

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> On Jan 23, 2018, at 2:38 AM, Deva Munay <devamunay@gmail.com> wrote:
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> Hey Hunter,
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> i hope this finds you wonderful! I know you are already in over your eyeballs in life’s projects and family and friends.
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> yet, still i thought i would reach out. A good friend’s 18 year old most amazing daughter Julietta, has brain cancer. I am extending this to you because i know you know the serious implications of this and have been there. traveled this path. If you know of any foundations that can offer them support, please let me or them know.
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> LY always.
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> Deva
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> Yesterday was the 21st - three months into this journey. Three long, difficult months. A season...
> a quarter of a year. The season of late fall faded into early winter as our "other" life faded into a distant memory. We now refer to life as before. Before the seizure, before the diagnosis, before October 21st, before this happened...the reference is always "before".
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> Before I continue, there is something that I have not fully shared. After Jules's surgery the pathology showed that contrary to the biopsy, her tumor is actually more serious than we thought. Instead of what the biopsy results showed from just a small tissue sample originally classified as an astroglioma level 3, the surgery pathology from her tumor resection came as a glioblastoma level 4 with good genetic markers that make treatment more successful. Of course this has been a huge blow & a very difficult thing to share.
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> But please, before everyone begins googling and saying how sorry they are to hear about this - we've had nearly a month find what we feel is the best approach to treating something that was already bad, to treating something worse & have scoured everywhere to find the best of the best.
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> That is when we found Candy Hammeras and Hammeras Group to connect us to UCLA & other top oncologists in the country, to decide to return to Children's in Denver because they'll collaborate with other institutions more openly while administering the "gold standard treatment" and we have the best looking out for clinical trials. Thank you again, Candy for your guidance in the allopathic world. And in the naturopath world, we are incorporating an adjunct treatment, working with Dr. Nasha Winters, who wrote the book, The Metabolic Approach to Cancer.
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> Because of the restructuring of Jules's medical team and some approaches that we feel work well as a whole and getting everything/one onboard , we are now starting her treatment this week. Actually, we were informed that her treatment already started...with a successful surgery six weeks ago. Now it's time to zap, poison, and starve the tumor that was too dangerous to Jules to fully remove and to destroy the microscopic cancer cells that were left after surgery.
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> She will have six weeks of radiation and chemo and another 8-10 months of chemo with the possibility of additional treatments along with implementing many adjunct therapies.
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> The adjunct therapies are very very expensive and are not covered by insurance. We also have expenses that the insurance does not cover which are thousands of dollars. The ongoing reality is not going to change for us this year - we're just 3 months in and it's only January.
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> Many of you ask how it is you can help. And so many of you already have given so much. Thank you. Thank you. We are creating a large fundraiser with the hard hard work of the Hammeras Group, their PR team and other friends that have offered their time, skill set, resources. If you have ideas, or have something that could be helpful to us, please let me know dona@donalaurita.com. Think about your networks that you can connect us with - share the links. Think about donating just a little something. Also donations made to this site, Caring Bridge do not go to us - so please use the GoFundMe link below.
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> Believe me, it is difficult to have this conversation on so many levels but I was encouraged to do so to let everyone know the reality of Julietta's diagnosis and just how serious it is. We need your help and will for a long long while.
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> The parent of a cancer patient recently said to me in one of our conversations: "You really get to know what people are made of in times like this".
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> Before I entered the world of a life threatening illness with my daughter, I felt like things like this would never happen to us - though I'd fear it, I felt removed. Cancer happens to someone else's kid. Not mine. I felt grateful that my kids dodged that bullet.
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> Today, three months later, I no longer feel removed - cancer happened to my kid. I still feel grateful - but grateful with a different meaning. Grateful in knowing what people are made of in times like this.
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> Friends are creating a website so our platform will be changing soon to have everything in one cohesive place. Please share links & your thoughts. We need you. Love to all. Team Jules. Super Moon.
> https://www.gofundme.com/juleslauritasmith
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> Deva Munay
> www.DevaMunay.org
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