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April 2012


In This Issue
Donor and Fundraising Updates
The CEO's Corner
Support and Education
Hydrocephalus Teens Take Charge

Hydrocephalus in the News - Raising Awareness


12th National Conference on Hydrocephalus!
June 26 - July 1


The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'


Upcoming HA Events


04/07 - Owasso, OK Hydrocephalus Support Group Meeting
04/18 - Greater Hartford, CT Support Group Meeting
04/21 - Los Angeles, CA Hydrocephalus Support Group
04/28 - Chico, CA Hydrocephalus Support Group Meeting
05/12 - Chicago, IL Hydrocephalus Support Group Meeting


Donor and Fundraising Updates


There are a million reasons to walk....HA WALKs Update!

In February and March, HA held WALK Chair Training seminars, where new and
experienced WALK chairs traded ideas, stories and tips.


Read more


And Join Us OnFacebook, Twitter and Youtube


The CEO's Corner

re*search / re?s?rCH/


Hydrocephalus Association CEO Dawn Mancuso talks of the changes about to take
place at HA and its future.


Read more


Support and Education


NINDS Director Dr. Landis to Headline HA's Conference in June


Dr. Story Landis, the Director of the National Institute for Neurological Disorders
and Stroke (NINDS) at the NIH, will be giving a keynote speech at the 12th
National Conference on Hydrocephalus.

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Read more


12th National Conference on Hydrocephalus: Travel Tips


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?Headed to the 12th National Conference on Hydrocephalus in Bethesda, MD? Here
are some travel tips to help plan your trip to join hundreds of other participants
at the conference.


Read more

Hydrocephalus Teens Take Charge

Meet Teens Take Charge (TTC) Council Member: MadisonMadison Pardi, a 14 year-old
member of our TTC Advisory Council, shares her story about hydrocephalus and
how she deals with the condition as a difference, not a disability.


Read more


??Hydrocephalus in the News - Raising Awareness

NPH Featured in the Huffington Post

Huffington Post Columnist Cynthia R. Green, PhD, shares her mother-in-law's
struggle to receive an accurate diagnosis of Normal Pressure Hydrocephalus
(NPH).


Read more


Louisville, KY Family's Hydrocephalus Story in the Louisville Examiner

Holly and Issac Frasure discuss their daughter's hydrocephalus diagnosis and
how it affects their family.


Read more


Two Children with Hydrocephalus Meet their HeroesEddie and Hannah meet their
heroes through the ‘Kids Wish Network,’ an international organization dedicated
to giving hope, happy memories, and an improved quality of life for children
having experienced life-altering situations.


Read more


Hydrocephalus Association | 870 Market Street, Suite 705 | San Francisco |
CA | 94102