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Hydrocephalus Association Newsletter - April 2011 Edition


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In This Issue
Donor and Fundraising Updates
Advocacy at a Glance
Hydrocephalus in the News
Hydrocephalus and the Media

Upcoming HA Events


04/16 - Rolling for a Cure


04/18 - TTC Joins the Boston Marathon


04/30 - Chico, CA - Support Group Meeting


04/30 - Richmond, VA - Support Group Meeting


Donor and Fundraising Updates


New WALK Chair Training Meeting
On February 26th Randi Corey, Hydrocephalus Association Director of Special
Events, taught a special training session for 13 new WALK Chairs. The seminar
was designed to bring our new 2011 WALK Chairs together and enable them to
share tips, hear success stories and learn how to overcome challenges, ensuring
their events reach maximum potential.


April 2011


Welcome to springtime.
In this issue of Pathways we feature two articles by guest writers Jilinda
Richer and Christian Karch. We also share the Hydrocephalus Clinical Research
Network's latest announcement in hydrocephalus research, provide news about
WALK season and how it's ramping up and promises to be our best ever, and continue
our series of articles in honor of Brain Awareness Week.
Again, we invite you to check all of our upcoming events.
With warm regards,
The team at the Hydrocephalus Association


On the Research Front


HCRN Announces the Latest Research News


Dr. Dave Limbrick, MD, PhD, a researcher at St. Louis Children's Hospital,
is the latest member of the Hydrocephalus Clinical Research Network and is
conducting a study to identify bio-markers in hydrocephalus.

Read More


Hydrocephalus in the News


Hydrocephalus Snowshoe WALK a Hit On March 12th, Christian, Laura and Sofia
Karch of Steamboat Springs, Colorado, hosted a Hydrocephalus Snowshoe WALK
to raise awareness and funds for hydrocephalus research. Read Christian's
article about their successful and unique event.


Read More


Brain Awareness Week: Part 2, Exploring Areas of the Brain Affected by Hydrocephalus In
honor of Brain Awareness Week, Karima Roumila, Hydrocephalus Association's
Community Programs Director, explores various areas of the brain affected by
hydrocephalus. Read it here.


Read More


A Most Unusual Christmas Party Jilinda and Ron Richer, a husband and wife
who both depend on medical devices made by the same company, were honored over
the holidays as Mr. and Ms. Medtronic at the shunt manufacturers holiday party.
Jilinda shares her story.


Read More


Hydrocephalus and the Media


Fort Meyers Family is Raising Awareness About Hydrocephalus
The Fort Meyers News-Press published a great article on hydrocephalus that
featured the Plucker family and their son Evan.


Read More


Durango Family Highlights Hydrocephalus in the News

?The Brown Family of Durango, Texas, are raising hydrocephalus awareness locally.
Read about them in the Durango Herald.


Read More


North Carolina Family Adopts Girl with Hydrocephalus

The Hardin Family of North Carolina adopted an Armenian girl with hydrocephalus
who was in critical condition.


Read More


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CA | 94102