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<td style="font-family: 'Open Sans', Arial, Helvetica, sans-serif; font-size: 11px; color: #565d63; padding: 20px 0 10px 0; text-decoration: none;" width="369">We are inviting our local advocates to join us for Rare Disease Week in Washington, DC.</td>
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<td><a href="http://www.hydroassoc.org/"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/Banner_Advocacy_ActionAlert.jpg" alt="Hydrocephalus Association" style="display:block; border:0;" /></a></td>
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<h1 style="text-decoration: none; font-family: 'Open Sans', Arial, Helvetica, sans-serif; font-size: 30px; line-height: 30px; color: #162028;">Join us for Rare Disease Week in Washington, DC! <br />
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<h1 style="text-decoration: none; font-family: 'Open Sans', Arial, Helvetica, sans-serif; font-size: 24px; line-height: 30px; color: #036883;">February 29 - March 3, 2016<strong style="color: #162028; font-size: 13px; line-height: 19px; background-color: #ffffff;"> </strong></h1>
<p><a href="http://www.hydroassoc.org/get-involved/advocacy/rare-disease-week/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/Button_Orange_271x48_Information.png" alt="More Information" style="display:block; border:0;" /></a></p>
<p>Every year the Hydrocephalus Association supports our partnership with organizations in the rare disease space and raises our voices for our community living with hydrocephalus and, in particular, with rare causes and forms of hydrocephalus, by participating in Rare Disease Day at NIH and Rare Disease Week on Capitol Hill. </p>
<p><strong>This year we invite our local advocates to join our staff to represent our community at these events.</strong></p>
<p style="text-decoration: none;">Below is a schedule for the week. You do not need to sign up for every event but note that you must attend the Legislative Conference on Tuesday to participate in the Lobby Day on Wednesday. </p><p>We would enjoy spending time with you at some or all of these events! Please email advocacy@hydroassoc.org to let us know you'll be attending so we can be sure to connect with you. Stay warm and safe in this storm!</p><p>SCHEDULE OF EVENTS </p>
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Monday, February 29th, 8:30am – 3:30pm
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Rare Disease Day</strong> at the National Institutes of Health (NIH) <br />
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<p>Monday, February 29th, 5:30 – 9:30pm
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Cocktail Reception and Rare Disease Documentary Screening</strong> featuring <a href="http://t.congressweb.com/l/?NHVTRGZBHYOBFQD">Dusty’s Trail: Summit of Borneo</a> at the U.S. Naval Heritage Center</p>
<p>Tuesday, March 1st, evening (Time TBD)
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Hydrocephalus Legislative Issues Training</strong>, place TBD</p>
<p>Wednesday, March 2nd, 7:30 - 9am
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Lobby Day Breakfast</strong> at the Capitol Hill Club</p>
<p>Wednesday, March 2nd, 9am - 5pm
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Scheduled Meetings with Members of the House and Senate
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<p>Thursday, March 3rd, 12 - 1pm
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Congressional Rare Disease Caucus Briefing</strong> in the U.S. Capitol Visitor Center
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Thursday, March 3rd, 5 - 7pm
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Rare Artist Reception</strong> in the Rayburn House Office Building
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<p>For those of you driving into town and needing <strong>lodging</strong>, we have information on our website. Click the information button below.</p>
<p><a href="http://www.hydroassoc.org/get-involved/advocacy/rare-disease-week/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/Button_Orange_271x48_Information.png" alt="More Information" style="display:block; border:0;" /></a></p>
<p><strong>BECOME AN ADVOCATE FOR HYDROCEPHALUS!</strong> Join our Hydrocephalus Action Network to receive legislative updates, action alerts, and invitations to advocacy events. <a href="http://www.hydroassoc.org/get-involved/advocacy/hydrocephalus-action-network/" target="_blank">Click here to join.</a></p>
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<td><a href="http://www.hydrocephalusconference.org" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/box-conference2016date.jpg" alt="Hydrocephalus WALK" style="display:block; border:0;" /></a></td>
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<td style="background-color:#ffffff; text-align:center; color:#565d63; padding:10px 0;"><strong>JOIN us at our<br />
national conference</strong></td>
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<td><a href="http://www.hydrocephalusconference.org" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/btn-moredetail.jpg" alt="" style="display:block;" /></a></td>
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<td><a href="http://www.hydroassoc.org/publications/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/box-find.jpg" alt="Hydrocephalus Publications" style="display:block; border:0;" /></a></td>
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<td style="background-color:#ffffff; text-align:center; color:#565d63; padding:10px 0;"><strong>FIND information<br />
and resources</strong></td>
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<td><a href="http://www.hydroassoc.org/cause-view/community-network/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/btn-moredetail.jpg" alt="" style="display:block;" /></a></td>
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<td><a href="http://www.hydroassoc.org/scholarships/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/box-scholarship.jpg" alt="Hydrocephalus Publications" style="display:block; border:0;" /></a></td>
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<td style="background-color:#ffffff; text-align:center; color:#565d63; padding:10px 0;"><strong>APPLY for one of<br />
our scholarships</strong></td>
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<td><a href="http://www.hydroassoc.org/scholarships/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/btn-moredetail.jpg" alt="" style="display:block;" /></a></td>
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<td width="226"><a href="http://www.hydroassoc.org/" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/hydrocephalus-logo-f6f7f3.jpg" alt="Hydrocephalus Association" style="display:block; border:0;" /></a></td>
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<td colspan="6" style="font-family:Arial, Helvetica, sans-serif; color:#036883; font-size:14px;"><strong>Join Us</strong></td>
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<td><a href="https://plus.google.com/+HydroassocOrg/posts" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/icon-g.jpg" alt="google+" style="display:block; border:0;" /></a></td>
<td><a href="http://instagram.com/hydroassoc" target="_blank"><img src="http://www.hydroassoc.org/images/EmailGraphics/Templates/icon-ins.jpg" alt="instagram" style="display:block; border:0;" /></a></td>
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<span style="color:#036883"><strong>Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.</strong></span>
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<em>Copyright 2015 Hydrocephalus Association, All rights reserved.</em>
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You are receiving this email because you opted in at our website or participated in a Hydrocephalus Association event.
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<strong>Hydrocephalus Association,</strong> 4340 East West Highway, Suite 905, Bethesda, MD 20814-4447<br />
<strong>toll-free</strong> (888) 598-3789 <a href="http://www.hydroassoc.org/" target="_blank" style="color:#565d63;">http://www.hydroassoc.org</a><br />
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<br><br>Mailing Address:<br>Hydrocephalus Association<br>4340 East West Highway<br>Suite 905<br>Bethesda, MD 20814 <br>US <br><br>Contact Name: Amanda Garzon<br>Telephone Number: (301) 202-3811<br><br>You are receiving this email because you have signed up for notifications from the Hydrocephalus Association or attended one of our events.<br><br><a href='http://www.kintera.org/TR.asp?a=hkIWJdN0JmLTKaP2H&s=dsITI9MFJeKXK3PCJoH&m=mgLQI1NILjISLaK'>Remove yourself from this mailing</a>.<br><br><a href='http://www.kintera.org/TR.asp?a=adKIJSOyHfKFIQOBF&s=dsITI9MFJeKXK3PCJoH&m=mgLQI1NILjISLaK'>Remove yourself from all mailings from Hydrocephalus Association</a>.<br><table width='100%'><tr><td align='center'><a href='http://www.blackbaud.com/PoweredBy'><img border='0' src='http://www.kintera.com/commonlib/images/SphereEMailBanner.jpg'></a></td></tr></table></body></html><img height='1' width='1' src='http://omt.kintera.org/omt/8681657535.gif'>